Today I heard the doorbell ring and when I got to the door, I found what looked like a small, shapeless sack. It was lightweight and it was obvious what it contained. Lesley Duncan, the "Scriptease woman", did say that she had ordered a month's supply of day and night bags, and here they were, so I am safe for at least a month. I have not opened the bag yet, probably because I don't want to find any problem today, but at least it has arrived. My experience so far is that, while everyone seems to do their bit very well there is not total coordination. So I am relieved that it has arrived as she said.
She also said she had informed the clinic, my doctor and the community nurse, and it is this latter who will be looking after me. In particular, she (or he) will have to change the catheter in August, some three months away. I shall feel better when she contacts me, and even better when I finally get an appointment for the clinic. It has been a bit frustrating, not knowing what they were up to. Lesley Duncan seemed not to be convinced they knew themselves. Anyway, this is where I am. I have a catheter and need to adapt.
I also have to find a way to deal with minor leakages (something like a teaspoon-full every other day). I hope it does not get worse. The booklets breezily tell me I can do more or less anything (including sex), but I shall take things as they come. For the moment, things are fine. It is not too uncomfortable, though the frequent intense feelings of urination are not welcome, especially during the night. I am amazed at how much ends up in my night bag every night. There looks to be a good 700mls, or nearly a whole bottle. In fact, it looks quite healthy, like a bottle of good champagne. My most beloved partner attends to all the fiddly bits. No words can express how grateful I am for all the love and help.
I shall try not to ramble so much in future.
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